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| Coping skills and Support: Left undiagnosed or untreated, endometriosis can be a frustrating condition. Painful periods can cause you to miss work or school and can strain relationships. Recurring pain can lead to depression, irritability, anxiety, anger and feelings of helplessness. Infertility linked to endometriosis also can cause emotional distress.That's why it's important to seek treatment if you suspect you may have endometriosis. Keeping a record of your symptoms can aid your doctor in your diagnosis. Finding appropriate help and support from those who have experienced similar symptoms is essential. The ERC of Greater Seattle is just the resource!ERC Resource List: The ERC offers a 13 page, detailed list of resources for those living with Endometriosis, as well as, those affected by the disease. The ERC resource list includes information about treatment centers, support groups online, online chat rooms, personal and professional websites, fertility references, recommended reading, drug references, research and studies, medical health sites, surgical references, professional societies and associations, patient advocacy and insurance, hysterectomy and menopause references, pain control infomation, relaxation techniques, alternative therapy information, centers and sites, disability resources, resources for dioxin and environmental issues, disability resources, and a listing of where you can opbain alternative and safer sanitary supplies. The ERC Resouce List is available for a donation to the ERC and may be obtained by filling out and returning the ERC Material Request Form, located at http://ww.endocenter.org/request.html
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| Live Support Groups: "If you're dealing with endometriosis or its complications, you may want to consider joining a support group for women with endometriosis or fertility problems. Sometimes it helps simply to talk to other women who can relate to your feelings and experiences".Infertility Support: Resolve provides support to those experiencing infertility issues. Resolve of Washington State is a local chapter of Resolve Inc., a national infertility association.
http://www.resolvewa.org
Lynn Jensen, RYT, MBA instructs yoga classes in the Seattle area focusing on fertility. An endo patient herself, she has insight into the disease and fertility challenges. Her website can be accessed: http://www.yogaforfertility.net
Positional Support via Yoga: Many women have found the practice of Yoga beneficial in managing endometriosis symptoms. The Yoga Journal offers recommended postures for women with endo at the following link: yogajournal.com/practice | | Online Support: Join our Greater Seattle Endometriosis Group online!! Facebook or join the ERC listserv http://erc.activeboard.com | | Educational Materials: Books Available: Endometriosis A Key to Healing Through Nutrition by Dian Shepperson Mills MA and Michael Vernon PhD HCLD, 1999 and 2004. Endometriosis The Complete Reference for Taking Charge of Your Health by Mary Lou Ballweg and the Endometriosis Association, 2004.
Research on Dioxins: Dioxins are suspected to play a role in endometriosis. Several online resources will help guide you to improve your environmental health. SimpleSteps.org Panna.org Ewg.org healthychild.org TheGreenGuide.com iceh.org FYI:The safest plastics currently are #2, #4, and #5. Avoid #3, #6, and #7
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| “I had the great pleasure to spend a night with the Seattle Endo Group at one of their meetings last month. About 15 women, all with different stories and different variations of the same disease, came together to support each other, and to learn about the disease that was affecting them and making their lives less productive, less pleasurable, and all in all less tolerable than they should be. I was proud to be able to be a part of this, a yearning to understand and conquer endo, not continue to be victimized by it. I was also proud of them, because they were doing something, both for themselves (educating ) and for others (supporting, caring, loving). Medicine is not a one-way dictum anymore, where the patient is a supplicant at the feet of the great physician, humbly requesting healing, and the physician gives the patient his treatment plan. No questions, no options, just do this and come back in a month. No, medicine today requires a commitment by both parties. A commitment by the physician to educate the patient about their disease, give them options, and help them understand why it's important to treat the disease in one way or another. The commitment from the patient is different but just as necessary. Patients must be an active participant in their healing - they must ask questions, keep track of how they feel and what things make them better or worse, they should be willing to try certain things that have been recommended to them, and most of all they need to be motivated to get better”
Dr. Cindy Mosbrucker October 9, 2007 | |
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